I haven’t been on my blog for quite sometime now, mainly due to our lives being so crazy turned upside down.  We sold our house and moved like 3 times in the past 2 years and my husband had major mouth surgery.  We have been to several doctors, homeopathic doctors, you name it we have tried it.  It really feels like homeopathic doctors want to try and find the root of the problem instead of just trying to medicate him to help the symptoms of CRPS, but regardless we still see both.  Every homeopathic treatment we have tried seems to have helped somewhat.   In my opinion it is good to keep your mind open to trying different things.  The nature of the beast CRPS is what works for some, doesn’t work for others.  Something in our case that we thought odd was every homeopathic test he had, said that his body was full of metal and wondered if that was causing a lot of his issues.  We were referred to a homeopathic dentist that actually knew what CRPS is and he did a 6 hour exam on my husband, in the end he really felt if we would remove all teeth, he would get better.  Many people come from around the world to see Dr. Wall to treat rare illnesses.  He believes most of our health problems come from our mouths.  Although, he is very good at what he does he also is very expensive.  We were also scared of CRPS spreading to his mouth and face.  Dr. Wall assured us that he would be sedated and use Ketamine as part the anesthesia.  With lots of prayer and sole searching we decided to put all other treatments we were looking into on hold and give Dr Wall a chance.  Going in with lots of doubt and not to mention the cost, we were both scared.  I felt bad for my husband, I can’t imagine what was going through his mind the day of surgery.  The surgery took all day long we didn’t leave dental office till 10 PM.  He was in a lot of pain and not too mention no more teeth.  The infection was so bad they had to go through his sinuses too, which means more pain and not blowing your nose for over a month.  He got the worst sinus infection I have ever seen, the doctor told us he expected that to happen because he had never seen so much infection in one mouth before.  This was December of 2017.  He has now had a few more surgery’s for certain types of posts to hold in dentures and every time the dentist has put him out and used Ketamine.  Even with all the pain he has experienced he has not had it spread to the surgical sight.  Our dentist also follows up with him by giving him vitamin C through an IV.  I can honestly say that it may not have taken away CRPS,  but its helped his flare ups.  He used to have a few every week and now it may be once a month.  People that have CRPS know what I am talking about a flare up means your entire body inside and out hurts and feels like its on fire and you can’t put it out.  He still has that sensation in his foot and leg, but now much less flare ups.  We are still looking into other treatments and will be forever praying for a cure.  For now he is trying to heal with his mouth and trying to get used to wearing dentures etc.  Something new has started with his hands, so far he hasn’t had pain, but they have become very weak and numb at times.  He lives such an active life style that this has really got him down.  We have had 3 MRI’s and now are trying physical therapy.  Doctors are puzzled and not sure what is causing it.  Their are some many unknowns with CRPS that I think it might have something to do with it, but again doctors don’t know enough about the disease.  Sterling has his days where I know he just wants to give up, living day after day in pain gets exhausting.  I know he has offended others by thinking hes ignoring them, isn’t listening, or just feels distant.  He doesn’t mean too, it just means his pain levels are high and he is just trying to function and NOT quit!  If you have a loved one or know someone with this disease please don’t take this stuff personal.  They are just trying to adjust to living with pain and will have good and bad days.  Know that they love you, they just need a little more support than before ok maybe a lot more support.  As a wife, watching your husband go through it can be excruciating.  I have wished I could trade him places many times.  I also understand how on their bad days sometimes its easy to get frustrated with your new life as well. That is not easy to admit, its not that you are being selfish it just means you have a right to be angry and frustrated too with the beast of CRPS.  It affects everyone around you.  I have learned throughout this process if I can take it day by day and count my blessings, I have so much to be grateful for and so does my husband.  This is a trial I wish upon NO one, but we both have become stronger on other levels in our life and we just keep pushing forward.

I would also like to say I have a friend that was diagnosed within a month of getting CRPS and entered a trial for Neridronate infusions. Her pain levels have been down to around a 3 which feels like she is in remission.  I wanted to mention this just in case someone is reading and wondered if it has ever helped anyone.  We haven’t tried it because of my husbands mouth problems, they didn’t want to touch him until that is completely healed, but it is something we have been looking into and researching. God bless those affected by pain, please know you are all in our thoughts and prayers.